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$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network

Cincinnati Children’s will continue as the RDCRN’s Data Management and Coordinating Center for another five years.

Group photo of approximately 50 DMCC members seated and standing in rows.

Patient Advocate Spotlight: Kristen Wheeden Steps into Lead Role for RDCRN Patient Groups

August 2 2021

Kristen Wheeden and her son, Brady, standing on their porch

Stories of Patient Engagement in Rare Diseases Research

June 2 2020

The Rare Diseases Clinical Research Network logo appears over a geometric design featuring fuchsia, teal, and purple triangles.

Perspectives on Rare Disease Research – An interview with Dr. Tiina Urv, the ORDR Program Director for the RDCRN

January 4 2018

The Rare Diseases Clinical Research Network logo appears over a geometric design featuring fuchsia, teal, and purple triangles.

Dr. Robert Desnick and Dr. Cynthia Tifft to Receive Rare Impact Awards

June 3 2017

Photos of 2017 Rare Impact Award winners Dr. Robert Desnick and Dr. Cynthia Tifft appear on a turquoise background

Central IRB Impact

June 1 2017

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Spotlight on an RDCRN Consortium: The Porphyrias Consortium

June 6 2016

The Porphyrias Consortium logo appears over a gray graphic of molecules

RDCRN Investigators and Patient Advocacy Groups – A Partnership

June 4 2016

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Q&A with Petra Kaufmann, MD, MSc, Director Office of Rare Diseases Research (ORDR)

January 6 2016

The Rare Diseases Clinical Research Network logo appears over a geometric design featuring fuchsia, teal, and purple triangles.