Latest News

Rare Research Report: December 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research below.Jump to:

Perspectives on Rare Disease Research – An interview with Dr. Tiina Urv, the ORDR Program Director for the RDCRN

January 4 2018

Dr. Robert Desnick and Dr. Cynthia Tifft to Receive Rare Impact Awards

June 3 2017

Photos of 2017 Rare Impact Award winners Dr. Robert Desnick and Dr. Cynthia Tifft appear on a turquoise background

Central IRB Impact

June 1 2017

Spotlight on an RDCRN Consortium: The Porphyrias Consortium

June 6 2016

RDCRN Investigators and Patient Advocacy Groups – A Partnership

June 4 2016

Q&A with Petra Kaufmann, MD, MSc, Director Office of Rare Diseases Research (ORDR)

January 6 2016

Rare Disease Research Training Program

January 4 2016

The Orphan Drug Act and National Organization for Rare Disorders Celebrate 30th Anniversary

June 7 2013