Latest News

NIH Announces Funding to Establish and Strengthen Rare Disease Research Groups

The National Institutes of Health (NIH) has awarded approximately $26 million in grants in the fiscal year 2025 to begin the fifth cycle of funding for the Rare Diseases Clinical Research Network (RDCRN).

Honeycomb-style infographic showing the structure of the Rare Diseases Clinical Research Network with consortia names

RDCRN Research Roundup: October 2021

October 5 2021

Research Roundup. #RareDiseasesSpotlight. Rare Diseases Clinical Research Network

Patient Advocate Spotlight: Kristen Wheeden Steps into Lead Role for RDCRN Patient Groups

August 2 2021

Kristen Wheeden and her son, Brady, standing on their porch

Stories of Patient Engagement in Rare Diseases Research

June 2 2020

Perspectives on Rare Disease Research – An interview with Dr. Tiina Urv, the ORDR Program Director for the RDCRN

January 4 2018

Dr. Robert Desnick and Dr. Cynthia Tifft to Receive Rare Impact Awards

June 3 2017

Photos of 2017 Rare Impact Award winners Dr. Robert Desnick and Dr. Cynthia Tifft appear on a turquoise background

Central IRB Impact

June 1 2017

Spotlight on an RDCRN Consortium: The Porphyrias Consortium

June 6 2016

RDCRN Investigators and Patient Advocacy Groups – A Partnership

June 4 2016