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Rare Research Report: December 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research below.Jump to:

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National Organization for Rare Disorders Honors the RDCRN at their Annual 'Partners in Progress' Gala

June 3 2012

The national organization for rare disorders (NORD) logo appears over a gray graphic of molecules

National Center for Advancing Translational Sciences (NCATS) Established

January 9 2012

The National Center for Advancing Translational Sciences logo appears over a gray graphic of molecules

The Office of Rare Diseases Research (ORDR)

June 1 2011

The Rare Diseases Clinical Research Network logo appears over a geometric design featuring fuchsia, teal, and purple triangles.

CTSA Consortium to Enhance Support of Rare Diseases Research

December 12 2010

The RDCRN and CTSA logos appear over a gray graphic of molecules

IOM Report to Accelerate Rare Diseases Research

December 5 2010

IOM Report

President Signs "Improving Access to Clinical Trials Act" into law

December 3 2010

The Rare Diseases Clinical Research Network logo appears over a geometric design featuring fuchsia, teal, and purple triangles.

Message from Alan Percy, RDCRN Steering Committee Chair

December 2 2010

The Rare Diseases Clinical Research Network logo appears over a geometric design featuring fuchsia, teal, and purple triangles.

Introducing Spotlight on Rare Diseases

December 2 2010

The Rare Diseases Clinical Research Network logo and Spotlight on Rare Diseases banner appear over a gray graphic of molecules