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National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.

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National Center for Advancing Translational Sciences (NCATS) Established

January 9 2012

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The Office of Rare Diseases Research (ORDR)

June 1 2011

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CTSA Consortium to Enhance Support of Rare Diseases Research

December 12 2010

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IOM Report to Accelerate Rare Diseases Research

December 5 2010

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IOM Report

President Signs "Improving Access to Clinical Trials Act" into law

December 3 2010

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Message from Alan Percy, RDCRN Steering Committee Chair

December 2 2010

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Introducing Spotlight on Rare Diseases

December 2 2010

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2nd Conference on Clinical Research for Rare Diseases

December 2 2010

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