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Goals, Mission & Vision

The mission of the Porphyrias Consortium is to expand knowledge about the porphyrias and thereby benefit patients and their families.

Within the framework of collaboration, the Porphyrias Consortium provides new and current information about the porphyrias to patients and their families, physicians and other health professionals, and the public. In addition, the Porphyrias Consortium provides training to young physicians who will be the future medical and research experts for these rare disorders.