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Join the RDCRN for FDA-NIH Rare Disease Day, February 27-28, 2025

Don’t miss the in-person and virtual celebration of FDA-NIH Rare Disease Day on February 27-28, 2025.

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FDA-NIH Rare Disease Day. February 27-28, 2025

Rare Research Report: December 2024

December 18 2024

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Porphyrias Over Time: What We’re Learning from a Natural History Study

December 17 2024

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Porphyrias Over Time: What We're Learning from a Natural History Study

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16 2024

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Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

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Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Twenty Years of the Rare Diseases Clinical Research Network: Looking Back, Looking Ahead

January 29 2024

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Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.

Establishing Evidence-based Guidelines for Diagnosis and Management of Liver Disease in Protoporphyrias

September 26 2023

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Establishing Evidence-based Guidelines for Diagnosis and Management of Liver Disease in Protoporphyrias

Rare Research Report: September 2023

September 19 2023

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Join RDCRN at Rare Disease Day at NIH on February 28

February 21 2023

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Rare Disease Day at NIH. February 28, 2023. #RDDNIH.