Latest News

$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network

Cincinnati Children’s will continue as the RDCRN’s Data Management and Coordinating Center for another five years.

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Group photo of approximately 50 DMCC members seated and standing in rows.

Pre-Doc Preparatory Program (P³) in Translational Research

June 23 2025

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Rare Research Report: December 2024

December 18 2024

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Porphyrias Over Time: What We’re Learning from a Natural History Study

December 17 2024

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Porphyrias Over Time: What We're Learning from a Natural History Study

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16 2024

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Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

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Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Establishing Evidence-based Guidelines for Diagnosis and Management of Liver Disease in Protoporphyrias

September 26 2023

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Establishing Evidence-based Guidelines for Diagnosis and Management of Liver Disease in Protoporphyrias

Rare Research Report: September 2023

September 19 2023

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Join RDCRN at Rare Disease Day at NIH on February 28

February 21 2023

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Rare Disease Day at NIH. February 28, 2023. #RDDNIH.