Latest News
National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families
The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.
![Flyer advertising the survey appearing on a laptop screen.](https://www.rarediseasesnetwork.org/sites/default/files/2024-02/RDPatientSurvey_image.jpg)
![Rare Disease Day at NIH. February 29, 2024. #RDDNIH.](https://www.rarediseasesnetwork.org/sites/default/files/2024-02/GF1VM4EXMAAreyb.jpeg)
Twenty Years of the Rare Diseases Clinical Research Network: Looking Back, Looking Ahead
January 29 2024
![Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.](https://www.rarediseasesnetwork.org/sites/default/files/2024-01/RDCRN_TAIRD_Jan2024.jpg)
Establishing Evidence-based Guidelines for Diagnosis and Management of Liver Disease in Protoporphyrias
September 26 2023
![Establishing Evidence-based Guidelines for Diagnosis and Management of Liver Disease in Protoporphyrias](https://www.rarediseasesnetwork.org/sites/default/files/2023-09/RDCRN_Roundup-PC.jpg)
![Rare Research Report logo](https://www.rarediseasesnetwork.org/sites/default/files/2022-09/RDCRN_Blog-RareResearchReport_0.jpg)
![Rare Disease Day at NIH. February 28, 2023. #RDDNIH.](https://www.rarediseasesnetwork.org/sites/default/files/2023-02/RDCRN_Blog-RareDiseaseDay_2023.jpg)
Senior Researcher Spotlight: Mohamed Kazamel Investigates Autonomic Neuropathy in the Porphyrias
January 10 2023
![Headshot of Mohamed Kazamel, MD](https://www.rarediseasesnetwork.org/sites/default/files/2023-01/RDCRN_Blog-Kazamel.jpg)
Training Program for Clinical Research in Rare Disease Launches New Session
November 9 2022
![Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant](https://www.rarediseasesnetwork.org/sites/default/files/2022-11/RDCRN_Blog-R25-training-program.jpg)
![Rare Research Report logo](https://www.rarediseasesnetwork.org/sites/default/files/2022-09/RDCRN_Blog-RareResearchReport_0.jpg)