Latest News

Pre-Doc Preparatory Program (P³) in Translational Research

Do you have a rare disease research coordinator, genetic counseling assistant, or technician who may benefit from formal training in clinical and translational research?

Rare Research Report: December 2024

December 18 2024

Porphyrias Over Time: What We’re Learning from a Natural History Study

December 17 2024

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16 2024

Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Establishing Evidence-based Guidelines for Diagnosis and Management of Liver Disease in Protoporphyrias

September 26 2023

Rare Research Report: September 2023

September 19 2023

Join RDCRN at Rare Disease Day at NIH on February 28

February 21 2023

Rare Disease Day at NIH. February 28, 2023. #RDDNIH.

Senior Researcher Spotlight: Mohamed Kazamel Investigates Autonomic Neuropathy in the Porphyrias

January 10 2023