Latest News

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.

Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13 2024

Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Twenty Years of the Rare Diseases Clinical Research Network: Looking Back, Looking Ahead

January 29 2024

Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.

Establishing Evidence-based Guidelines for Diagnosis and Management of Liver Disease in Protoporphyrias

September 26 2023

Rare Research Report: September 2023

September 19 2023

Join RDCRN at Rare Disease Day at NIH on February 28

February 21 2023

Rare Disease Day at NIH. February 28, 2023. #RDDNIH.

Senior Researcher Spotlight: Mohamed Kazamel Investigates Autonomic Neuropathy in the Porphyrias

January 10 2023

Training Program for Clinical Research in Rare Disease Launches New Session

November 9 2022

Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

Rare Research Report: November 2022

November 7 2022