Latest News
Join RDCRN at Rare Disease Day at NIH on February 28
Don’t miss the in-person and virtual celebration of Rare Disease Day at NIH on Tuesday, February 28, 2023, from 9 am to 5 pm EST. Each year, the NIH’s National Center for Advancing Translational Sciences (NCATS) and the NIH Clinical Center sponsor the event as part of the global Rare Disease Day observance.
Senior Researcher Spotlight: Mohamed Kazamel Investigates Autonomic Neuropathy in the Porphyrias
January 10 2023
Training Program for Clinical Research in Rare Disease Launches New Session
November 9 2022
Predicting Drugs and Chemicals that May Induce Porphyric Attacks in Patients with Acute Hepatic Porphyrias and More: RDCRN Research Roundup
May 16 2022
Study Finds ABCB6 Genotype Does Not Correlate with Disease Severity in Porphyria Phenotype and More: RDCRN Research Roundup
April 26 2022
RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research
March 14 2022
