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Join the RDCRN for FDA-NIH Rare Disease Day, February 27-28, 2025

Don’t miss the in-person and virtual celebration of FDA-NIH Rare Disease Day on February 27-28, 2025.

FDA-NIH Rare Disease Day. February 27-28, 2025

Senior Researcher Spotlight: Mohamed Kazamel Investigates Autonomic Neuropathy in the Porphyrias

January 10 2023

Headshot of Mohamed Kazamel, MD

Training Program for Clinical Research in Rare Disease Launches New Session

November 9 2022

Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

Rare Research Report: November 2022

November 7 2022

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Predicting Drugs and Chemicals that May Induce Porphyric Attacks in Patients with Acute Hepatic Porphyrias and More: RDCRN Research Roundup

May 16 2022

Laboratory technician looks through a microscope in a medical laboratory

Study Finds ABCB6 Genotype Does Not Correlate with Disease Severity in Porphyria Phenotype and More: RDCRN Research Roundup

April 26 2022

Two researchers in the lab looking at a tablet

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14 2022

Three icons featuring a trio of silhouettes, a chemistry flask and stethoscope, and a contact card appear next to the text, Join Our Contact Registry - Learn about opportunities to participate in our research, receive information about our work, connect with our consortia and patient advocacy groups. rdcrn.org/registry appears next to the Rare Diseases Clinical Research Network logo

RDCRN Research Roundup: February 2022

February 3 2022

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RDCRN Research Roundup: October 2021

October 5 2021

Research Roundup. #RareDiseasesSpotlight. Rare Diseases Clinical Research Network