Latest News
Join the RDCRN for FDA-NIH Rare Disease Day, February 27-28, 2025
Don’t miss the in-person and virtual celebration of FDA-NIH Rare Disease Day on February 27-28, 2025.

Senior Researcher Spotlight: Mohamed Kazamel Investigates Autonomic Neuropathy in the Porphyrias
January 10 2023

Training Program for Clinical Research in Rare Disease Launches New Session
November 9 2022


Predicting Drugs and Chemicals that May Induce Porphyric Attacks in Patients with Acute Hepatic Porphyrias and More: RDCRN Research Roundup
May 16 2022

Study Finds ABCB6 Genotype Does Not Correlate with Disease Severity in Porphyria Phenotype and More: RDCRN Research Roundup
April 26 2022

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research
March 14 2022


