Latest News
$27M Grant Renews Cincinnati Children’s as Coordinating Center for the Rare Diseases Clinical Research Network
Cincinnati Children’s will continue as the RDCRN’s Data Management and Coordinating Center for another five years.

Senior Researcher Spotlight: Mohamed Kazamel Investigates Autonomic Neuropathy in the Porphyrias
January 10 2023

Training Program for Clinical Research in Rare Disease Launches New Session
November 9 2022


Predicting Drugs and Chemicals that May Induce Porphyric Attacks in Patients with Acute Hepatic Porphyrias and More: RDCRN Research Roundup
May 16 2022

Study Finds ABCB6 Genotype Does Not Correlate with Disease Severity in Porphyria Phenotype and More: RDCRN Research Roundup
April 26 2022

RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research
March 14 2022


