Latest News
National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families
The devastating impact of COVID-19 on the general population is well-documented—but less is known about the millions of people living with rare diseases.
Predicting Drugs and Chemicals that May Induce Porphyric Attacks in Patients with Acute Hepatic Porphyrias and More: RDCRN Research Roundup
May 16 2022
Study Finds ABCB6 Genotype Does Not Correlate with Disease Severity in Porphyria Phenotype and More: RDCRN Research Roundup
April 26 2022
RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research
March 14 2022
Patient Advocate Spotlight: Kristen Wheeden Steps into Lead Role for RDCRN Patient Groups
August 2 2021
Perspectives on Rare Disease Research – An interview with Dr. Tiina Urv, the ORDR Program Director for the RDCRN
January 4 2018